Tuesday, October 25, 2011

Day 8 through 14

Day 8 Tuesday
Gary and I had a jam packed day full of various medical training, we had to learn how to use a pulse oximiter, learn how to draw up Tuckers four liquid medications, and use the specialized hospital scale. Gary spent the night at the hospital so I could spend a night at home with Spencer.

Day 9 Wednesday
Gary had to go into work today, so when I got to Children's Hospital, we swapped the car and I spent the day in the hospital finishing learning to keep track of his high calorie formula and his medical binder. Noel Dwyer, Tuckers NICU RN stopped by to see us off as well. We were discharged around 3pm. First stop on the way home was the compounding pharmacy (in Framingham) to pick up Tuckers medications. then home to see big brother Spencer.

Day 10 Thursday
Tucker slept for 5 hours straight through the night. Gary got up most of the night so I could get some well needed rest. We took it easy for most if the morning, because the VNA would be coming around 1pm. I took a nap while the baby napped, I woke up around noon, ate lunch and awaited our RN. A little after 1pm, Bonnie arrived, she was a lovely, friendly, sensitive lady. She gave us a bunch of information and helped us hook Tucker up to the pulse ox machine. The VNA will come out weekly.

Day 11 Friday
Gary and I continue to give Tucker his medications and weigh him on a daily basis, he is continuing to grow. Today we took Tucker to meet his Pediatrician Dr. Kolpa.

Day 12 Saturday
Spencer had soccer today. Mommy got to go while daddy stayed at home with Tucker. It was freezing out but it was good to have some mommy time. The weather channel is forecasting 8 inches tonight. I was completely in denial until It started snowing in the afternoon. Around 7pm a huge branch fell off of the tree in our driveway onto my car. I moved my car to the front of the house, where it would be safe.

Day 13 Sunday The snow storm
In the early morning hours, a tree fell and hit the house tearing the power lines off of it. I believe that it was the same tree that fell and also hit my car. The electrician came and said that since the wires were live, the power had to be turned off. No power means no heat, so off to grandfathers house in NH we went.

Day 14 Monday Halloween
Spencer is going stir crazy at my fathers house and Gary and I are going out of our minds. Nothing like traveling with an infant and all of his medication and equipment. Halloween was canceled because of the storm, so Spencer couldn't even go out and go trick or treating. Had to have my car towed to the auto body to get fixed after all of the damage from the storm.

Monday, October 24, 2011

Day 7 Monday Mommy and Tuckers first night together.

Spencer woke up with a runny nose, Gary and I panicked because we thought that he was getting sick. Then he started to drool, thankfully he must just be getting molars. Whew!

I packed a bag and Gary drove me into Boston so I could spend my first night with Tucker. Shortly after we arrived we meet with a resident named Diego that works for Dr. Oscar B. The chief of cardiology at MGH. He stated, "Tucker is doing so well, we are running out of reasons to keep him here". So it looks like one more Echo of his heart, another X-ray to make sure his stints haven't shifted, some training for Gary and I and we are good to go home. Yay! Overnight, Tucker passed his car seat test with flying colors, I even tried to breastfeed him yesterday, with our luck, the lactation consultant thinks that he might be tongue tied. Hopefully we can get that fixed before we go home.

Sunday, October 23, 2011

Day 6, Sunday

I could not sleep very well last night, I had to call the NICU at 4 am to make sure everything went well overnight. Everything went really well last night, Tucker is up to a little over and ounce of milk and seems to be satisfied with that amount. We kind of got a late start today, we had a lot to do at home to get Spencer's lunches and clothes together for the week.

We got into the city around 10am and grandfather and Nancy where already there. Unfortunately Tucker cannot have any visitors in the NICU without a parent, so they and to wait until we arrived.

We got some great news just after Nancy and grandfather left. Tucker was going to be moved to the cardiac floor because he is doing so well. To prepare him for the trip he got moved from a Isolet to a crib. He no longer has to have the dextrose by IV, so they were able to remove his central access line that was in his belly button. He is still working his way up to full feeds, which will hopefully be tomorrow.

Day 5, Mommys going home alone

Today Kelli went to feed Tucker at 9am because the doctors needed to take some vital's before they can discharge me from Brigham Women's. Little Tucker is up to about 3/4 of an once per feeding which is still not enough to please him. The Lasix seems to be going very well the only side effect seems to be frequent urination. My brother Chris came down from Maine to meet the little man, also Grammy, Great Grammy, and Gary's sister Michelle.

Yesterday Gary took Spencer to his soccer game, the teams where pretty evenly matched. When one of the little boys took the ball from Spencer he pushed the boy to the ground and had to sit out for 5 minutes, Maybe we need to get him into hockey. My cousin Tracey picked up Spencer after soccer so that Gary could come back into the city to spend the day with Tucker and I.

Now that I have been discharged, and Tucker is still in the NICU we have no place to stay. I know that the nurses are taking great care of him, but I still feel like one of us needs to be nearby. Gary had washed all of our clothes and brought them back in thinking he would be prepared in case Tucker got moved to the cardiac floor. Looks like we will be spending a night at home, guess it will be good to sleep in my own bed.

Friday, October 21, 2011

Day 4

Today we woke up at 5 am for my daily blood-work. We made a call over to Children's to check how the feedings went overnight. The feedings are going very well, Tucker is taking milk like a champ. They have to limit his food and slowly increase the amount, which leaves him looking for more (He is truly a Pelkey). They are giving him breast milk (but his supply is currently limited) they are supplementing with Similac Advance to increase his caloric intake. They have started weaning him off of the IV and Dextrose. It looks like everything is going well and he can probably skip the first major open heart surgery. Tucker is still waiting for an opening on the cardiac floor, but he is doing so well that he wont need to go to the cardiac NICU. Instead he will be in a regular room with a convertible bed for mom or dad. This will allow one of us to stay overnight with him and the other to be home with Spencer every night. We would like to keep Spencer's schedule as normal as possible.

We spent quite a long time in the NICU today, We got to meet the attending cardiologist over Tucker, his name was Wayne and Kevin. Not sure about their last names as I left the paperwork in the ICU. They explained that Tucker will have to be put on Lasix in the morning because his oxygen level is steadily increasing, which means there is too much blood flow going to his lungs. They are not too concerned about it, but it might buy us a little less time before the next surgery. Dr Kevin and Dr Wayne made a bet. Dr Kevin said that he thinks Tucker will need surgery around the 3-4month range. Dr Wayne thinks that he will be fine to wait until 6 months. I told them that I will buy them both Starbucks! They really are fantastic!

Tucker also had a lot of visitors today, Kelli came down from Maine to meet him and help me out so Gary could spend a night home with Spencer. Aunt Lolly, Grandfather, Nana, Aunt Nancy, Pam, Spencer and my cousin Jessica also stopped by.

Gary is going to go home tonight, my friend Kelli is going to spend the night with me in my room. Gary should be back in Boston in the afternoon for my checkout of Brigham Women's.

Thursday, October 20, 2011












Day 3

Tucker came out of the cardiac cath late in the afternoon. We where called to Children's to meet with the cardiac cath team. We where told that his right ventricle was not going to be able to be used. So our first setback is that he will be a single ventricle child. The team was able to place two stints to keep the VSD open. This will hopefully allow him to skip the first open heart surgery. We should know more next week once we see how he maintains his oxygen levels. Tucker did get to feed today, he did not tolerate very much before falling asleep which is common. But we are hopeful that it should improve overnight tonight. More to come, including photos.

Day 2

Late yesterday Gary met with the doctors from cardiac. During the baby's echo-cardiogram the doctors learned that they may be able to open the right side of the heart and hopefully make it partially functional. Once blood flows into the right side there is a chance it will grow. The baby was scheduled for the catheder surgery on Wednesday and would be the third surgery of the day which would be sometime in the afternoon. The baby's oxygen and glucose levels both plateaued at 80 which is perfect for a gestational diabetic and the oxygen level is considered very good for his heart condition.

I got a new nurse this morning in the labor and delivery unit where they are monitoring me and she is wonderful! She is so much more understanding of how hard it is being away from my baby and visitors and Gary bouncing back and forth from Children's. I have been starving since before the c-section and she brought me a menu so I could finally get some real food into my stomach. The nurse was also able to get permission to pull my catheter and get me out of bed and moving. This was extremely important to me because I needed to get moving so i could be moved to another floor and meet my baby and have visitors. The wonderful nurse let my friend Laura visit shortly before they moved me to the 8th floor at Brigham. Gary got me into a wheelchair and we headed upstairs. I think we made the fastest checking in ever, I got permission from my nurse to go visit the baby at Children's almost right away. I did refuse to name him until I could spend some time with him, and he was due to go into surgery sometime in the afternoon. There was no way he was not going to have a name and go into surgery. We went through the names Gary and I liked and I did not think he looked like a Grady, Grant or Sawyer so we named him Tucker David Watson (David after our friend Dave Johansen and Pam's brother, who died over 10 years ago from Wegeners Granulomatosis.).


Wednesday, October 19, 2011

The big day!

Yesterday started with me frantically waking up all night long because I couldn't feel the baby moving. Panic stricken we drove into Boston around 6am, come to find out I was severely dehydrated. As soon as we were checked in and they started pumping hydration into me, his fetal movements picked up. Then at around 9:30 they wheeled me into the OR for my spinal/epidural. It took about 20 minutes to numb, then the C-section proceeded as expected. Baby Watson arrived at 10:04 am and got a quick minute with mom before being rushed to the NICU. Dad went with baby Watson and left Pam with mom in the OR to complete the C-section and tubal ligation. Mom had some complications her blood pressure and oxygen dropped and she vomited and lost alot of blood during the rest of the procedure, narrowly avoiding an immediate blood transfusion. Mom was moved to labor and delivery for 24 hour observation and was not allowed any visitors, even her father was told he could not visit.

During moms complications, Baby Watson was doing well in the NICU with Dad and the 7 nurses. The nurses had to remove merconium from his airway after delivery, so they had to monitor his breathing and his Oxygen saturation levels. Glucose levels where also low and had to be monitored, but that is common when mom had gestational diabetes. The nurses where preparing the baby for the transfer to the Children's Hospital cardiac ICU as planned. After about an hour Baby Watson was stable and the nurses made the call to the Children's cardiac ICU. The cardiac ICU was full and the baby was stable and looking good, so the decision was made to bring him to the Children's NICU instead which is just 1 floor down from the cardiac ICU. The Children's NICU monitored the baby's Glucose and oxygen levels which improved throughout the day. Michelle's father and her aunt Laurie who where not allowed to visit mom where able to go with dad to visit the baby and where his first visitors. Mom didn't get to see the baby for more than one minute after the delivery. So no name for baby boy Watson just yet.

Thursday, October 13, 2011

I guess they weren't talking about me.

Today started out slow, it took me 2 1/2 hours to get to BWH for what was suppose to be my routine appointments. Another failed NST, ultrasound and BPP. He passed the BPP at a 8/8. While sitting in my OB's office awaiting my MD appointment, the woman that performs my NST's came to get me, she said that Dr. Katz didn't like the results from my repeat NST, so he wanted me to go to Labor & Delivery for additional testing. I was seated in triage of labor and delivery fir 5 hours for more testing, while I was there they made me get a psych consult, something they stressed was routine for the baby's diagnosis. Right before the psych MD's came in I heard two people talking in the hall saying things like..."so she is getting admitted to a room". I panicked and started to cry, I just knew that they were talking about me. And obviously what a perfect time for the psych folks to come in. They got my RN, Jane, who assured me that she was sure that I was going to be released. I received my psych consult and went on my way to my OB's office once I was released. Where I sat for an hour until I helots the go ahead that I could go home with no followup appointments until the date of my csection. What a ridiculously long day. I was grateful to be home and to see Spencer again.

Sunday, October 9, 2011

To do lists

Do they ever end?

I have written so many of these over the past few months. I even started my Christmas shopping today. I am hoping that we will be home by Thanksgiving, but just in case we are not, I wanted to get a head start on it. I am not thinking that I will be doing much outside of the home with a sick newborn.

I also talked to my aunt about a pulse oxcimitor the other day, her respiratory therapist advised her to get one with respirations on it as well. Hopefully this will give us a little piece of mind about the baby's health. As the babies oxygen rate goes down he will have to go right to the hospital. I feel as if I have read all of the best/worse case situations, now we just have to spoil Spencer like crazy over thenext nine days and wait it out.

Friday, October 7, 2011

Ftidays agenda.

First up, Allergy shots. Fun! I get to the MD's office in downtown Framingham and they will not give them to me because I got a flu shot on Monday. Apparently a woman had a bad reaction a few weeks ago and ruined it for everyone. NICE!

I treat myself to Starbucks and make my way to the pike. Only to enjoy a lovely sea of red tail lights before me. Ugh! I gave myself a bunch of time today, since I have a bunch of appointments. Since I have ample time today I decide that I am going to be daring and actually find my way to the BWH parking garage. (Instead of parking at Children's and walking through the hospital.). I notice that my gas light is on, lovely, trying to find a gas station in Boston is like looking for a needle in a haystack! I did manage to find it, success! I proceed to floor 4 to find a parking space, and in the matter of 2 minutes I manage to loose my parking ticket, of course I need to have it validated to pay the discounted parking rate. (seriously?). I decide to pay full price and proceed in to the hospital, Starbucks is already kicking in!

Next up, anesthesiology and neurology consult, I meet a lovely Anesthesiologist who asked me about my films, she pulled my previous records and then asked me if she could keep my films for a while agreeing that there was no need for me to stay here all day. She was particularly concerned that Spencer was delivered under a regular spinal, not just an epidural. She assured me that she did not think that I would have any issues if I hadn't before with Spencer, however, she just wants to make sure and run it by the team.

I make my way downstairs to my NST (non stress test) and without fail, not a seat left in the house, LOVE IT! ( I can't help but think, what a long day today is going to be!). I wait about 20 minutes and they call me in, I got a lot of angry looks by people waiting, I think ultrasound must be running behind. But I love my NST's, to try and get the baby to move they give you juice, they must not read the patient's chart... it's got "Gestational Diabetic" all over it! (hehe). I drink a few ounces and he starts to squirm. Yes!

Good thing I didn't get to excited, failed NST...again! Figures out of the 4 beds in the NST room, I am the only one that fails, and has to wait the entire 40 minutes on the machine, only to be sent for a BPP, unbelievable! I guess that you have to just laugh, my luck sucks!

Next up, ultrasound to check the amniotic fluid level, baby's weight, and to get the BPP scores. I wait so long in ultrasound, I should have my very own seat, I see a lovely bunch there as well, a lovely specimen of a mother of already 3 children, and she, you guessed it, pregnant again. She was a spoiled little brat that complained over and over again about how this is disrupting to her schedule. I wanted to slap her! the 3 Kids were so disrespectful to her, I couldn't believe it! She must have been with her mother. The nicest thing I can muster to say about her is that I liked her " I am a vegan" shirt. She finally took the kids out of the waiting room! Thank god!

I waited 45 mins, insane! Everything looks the same, off we go to Advanced Fetal Medicine, and guess who is in the waiting room, the winner of mother of the year, her name is Kearston, and she lives it Fall Riva. I know all of this and more, due to a very inappropriate conversation that she was having in the waiting room. First with a dental office about the miscommunication of an appointment, then with her mom, then with Chad, then a girl named Melissa who is going to go and pick up her other child from school. OMG, I just noticed that she is wearing PJ's and actually looks high on something, she is talking about a mile a minute too, I can't help but wonder, maybe this is why she is here. She goes on and on telling them demands....I am mad but clearly I think it's hysterical its like a reality show gone bad! The kids are playing on the water machine now. They call her in and the entire clan goes into the office. Next they call me in, yup, right into the office next door. Perfect!

After about 30 minutes, 20 of which I had to listen to those crazy screaming kids next door. My new OB enters, Dr Carusi, she reminds me of Popeye's Olive Oil. She said that Dr Feinberg has filled her in to my entire medical history. She asks me some questions and then she asks to see my incision. Looking at it, she thinks that it would be best to make another incision, due to the scar tissue. She said that my previous scar looked fantastic! After a few minutes of questions, we decide that I ready for my csection. One more all day of appointments and we are good to go. I go up to the labor and delivery floor to obtain my MRI's , the anesthesiologist informs me that I should be completely fine with a spinal...Yay!


Thursday, October 6, 2011

Grateful

Gary and I are extremely grateful to have such a great support system.

Yesterday both of our workplaces had baby showers for us. We received an outpouring of support and gifts.

Thank you just doesn't seem to be enough sometimes.

Sunday, October 2, 2011

Happy Birthday Gary!

I started the day today going to the "Consign my Closet" event with Pam. There I got a used (barely) Brittax stroller for $75. It was the deal of the century. Since today is Gary's 35th birthday, as much as we were not in the mood for a big celebration. We (Gary's mom, Spencer and I) took the birthday boy to his favorite restaurant, Longhorn. Pam and Kevin cooked us dinner and made a carrot cake for Gary as well.

It seems that I have also come to terms with this pregnancy, looks like "nesting" has started. We are almost ready for baby to arrive. Just a few more things to get in order before our life gets turned upside down.

I was thinking how lucky I am to have found the greatest husband in the world. It makes me so happy that He had a fantastic day, it was nothing too fancy, but it was perfect for us.

I am so thankful going to bed tonight. :o)