Tuckers second cardiologist appointment

Today we returned to Children's hospital in Boston to do Tuckers echo-cardiogram and meet with Dr.Porras. Everything is looking good and Tucker is doing well enough to stop taking taking his Lasix medication. Dr.Porras still thinks we have about another 4 months before we need to schedule the Glenn surgery. The hope is that after his Glenn surgery he will be able to completely come off of all his medications.

We also had to meet with Spencers teachers today at Preschool. He is having some anger issues and punched a child for touching the puzzle he was working on. It was not all bad news though, we were told he is very polite and always uses his magic words.

Tough times

Well, we have certainly been busy, over the past week Spencer had his last soccer game and his awards banquet. Gary went back to work this week and I have been taking care of Tucker solo. It's hard enough taking care of a healthy newborn, keeping up with daily weight gains, oxygen readings and medications is physically exhausting.

To add to our stress, Saturday, my best friend Kelli's (from Maine) 9 day old niece Peyton died from SIDS. You can imagine our sorrow as my family is very close to hers, Nelson her brother is
one of my brother, Chris's best friends. (ironically, their friendship is how Kelli and I even met over 20 years ago). We have been through some of the greatest times together, our marriages, the birth of our children, and we have countless party stories. We have also shared some of the toughest of times, with the loss of our dear friend Dave. Through thick and thin, we have always been side by side, until now. Because of Tucker's compromised immune system and we can not risk him getting sick, since it will land us back at Childrens's Hospital, we can not travel to Maine to attend the services. This is devastating me, because all I want to be is with her and her family at this terrible time.

Let's hope that things get a little brighter.

Tucker

Wednesday November 2nd

Today early intervention stopped by to see how Tucker is progressing. He is still eating well and gaining weight, there is not much else to monitor at this early age. They will be returning on November 16th so that they can keep an eye on his progress.

Spencer is still acting out in preschool. He is not listening to his teachers very well, and has picked up a new word "butthole". The thing that bothers us the most is that he uses it correctly, where an adult would say "asshole".

Tuckers first cardiologist appointment

Today we met Dr.Porras , Tuckers pediatric cardiologist. We learned that Tucker was only the third child to receive stints to avoid the first open heart surgery for Tricuspid Artesia. He thinks Tucker will be able to go about 6+ months before needing the Glenn procedure. The Glenn procedure will be the first part of the permanent fix to Tuckers circulatory system. The Glenn procedure will take place at the Children's hospital, where Tucker will remain for 4+ weeks to heal.

Gary's brother who works for National Grid was able to swing by our house on his break and turn our power back on at the pole. This saved us a few days waiting, being the only house on our street without power. It was awesome to be able to return home after our appointment to a house with heat.

We really cant thank all of our family and friends enough for all of the support. You are all the greatest, Thank You!