It's My Heart CHD Awareness Walk and Our Family's CHD Video

Please help us find a cure for CHD's or consider walking with Tucker's Troops on June 29th, 2014 in the It's My Heart's 4th Annual CHD Awareness Walk. 


After weeks of compiling photos and music for our family's CHD video, I am proud to report that our vision is now complete. 


Enjoy.


Tucker's CHD Video on Youtube


Tucker's CHD Video on Vimeo

2 month post op appointment and The Heart Walk

Tucker had his two month post op follow up on Tuesday at the cardiology clinic at Childrens Hospital in Boston.  It went well.  Tucker was quite the challenge during his vitals.  Joe was so patient with him during all of it. Tucker also told me during our wait in the clinic that he had to go poop.  We hurried into the bathroom and sat on the toilet for a minute then he hopped down while screaming that he no liked it.  Within minutes he had gone poop in his diaper, just when they called his name for his vitals.  UGH...Potty training is so difficult. 

Then Dr Porras came in with a medical student from Harvard.  I believe that her name was Dr Gellis.  She was sweet, but she couldn't have been more patient.  Tucker wanted to have nothing to do with either of them.  He screamed the entire time, saying "No touching me" and "NO like".  In a nutshell, Tucker needs more time to recover.  He is still on double doses of diuretics with no end in sight.  He thinks that we will have to be on them quite some time as he is still retaining a lot of fluid.  He wanted another follow up appointment in 2 months to check on his status of fluid. 

On a lighter note, Gary and I have been filling these last few weeks with baseball and cub scouts activities.  Spencer got to go to the Clinton Firestation this week.  What an excting time for our boys.    Spencer got himself dressed all by himself for the occasion. 

Back at home our daily schedule looks a little like this, eat, then have a meltdown, repeat...

One big plus to his OHS is that now he can sit and eat a meal without getting winded.  Since he is allergic to milk it has been a real chore to get him to et anything but peanut butter.  We have started to be able to find items like breads and muffins without any milk that he is able to eat. WINNING!

Mommy is going to an adult CHD seminar tonight that she has been excited about for a few days.  I am so proud of all of the work that I continue to do within the CHD community.  The Heart family's that I have met because of Tucker's diagnosis have been so inspiring.  Please join us with Tucker's Troops for the annual Its My Heart CHD Walk.  Its a wonderful day full of fun for the entire family.