Well the day has finally arrived. I cant believe that it has been two months since our last visit to the cardiologist. What a challenging two months we have had. Tucker continues to be on several doses of diuretics daily. He still takes Aldactone and double dose of Lasix daily. We signed into the cardiology clinic and updated our paperwork and Medication sheet and I saw his "Past Procedures" and a wave of sadness came over me. It is sometimes surreal how far we (and I) have come these last three years. Next month it will be three years that I have heard the words "Congenital Heart Defect", "Tricuspid Atresia with a Ventricular Septal Defect" or "Palliative heart surgeries". It's crazy how we have been thrown into this world of CHD's and how much we have had to learn these past few years about Tucker's special heart.
Currently, Tucker's oxygen sats are hovering around 95. This could be happening for two reason's. (They shouldn't be this high) They should be in the 80's if they are still using the fenestration (4mm hole) that they made during his Fontan in March. His heart could simply not need the fenestration and could be functioning properly on his own. (ideal situation) OR it could have closed on its own. With that being said, the reason is not important, his EKG in clinic looked great. So we will have to wait to see about the fenestration at his next catheterization.
Dr. Porras showed us Tucker's updated Growth chart. I am proud to report that Tucker is now hovering at 21% in weight and 7% in height. We will take it! He had gained 1.5lbs in two months. Although I swear that the weight increase is due to our recent discovery of Tucker's new favorite treat.. Chocolate Almond Milk. Since he has a whey protein allergy, it has been hard to get him to eat many non milk things. He has no desire to want to chew many things, he would drink it all if we would let him. We will be scheduling another allergy testing for sometime this fall. Fingers crossed. Until then....The news that we have been waiting to hear for months...
Dr. Porras: "We will see you in 6 months!"
That's right...No clinic appointment until after Martin Luther King D in January!
Merry Christmas to us!
The entire family went out tonight to celebrate. We went to the Lego store and got both of the boys toys, we went to PF Chang's for dinner, and got them candy for dessert. It was an amazing night had by all.
Thank you everyone for your continued prayers for our family. We couldn't be happier and feel more loved.
Spencer has been doing great this summer, we continue to go to the library and practice reading with him. He has been very busy with camps this summer. He just finished an outdoor camp last week and is in Church camp this week. He is learning a lot and can even identify 20 different birds and insects now. Mommy promised him that he could get a Mohawk at the end of school, he is LOVING all of the attention and "hi-fives" that he is getting with his new spiked hair. He also just lost his two front teeth, pictures to come...
Mommy and Daddy have been working a lot on the house. We just completed the side yard by adding three large garden beds and a large tiered herb garden to our property. We repainted our existing fence and it looks like a new property. Our garden is thriving and growing a bunch of yummy items like carrots, beets, spinach, romaine, snap peas, eggplant, zucchini, yellow squash, green beans, cucumbers, strawberries, blueberries and 4 types of tomatoes. We are teaching the boys how to weed and take care of the plants. They love going outside and picking their own items for dinner or snacks. Since the side yard is done, we are making the five plans for the "new backyard". This will take a lot longer to plan. As I am determined to place a pool in the backyard in lieu of our existing 50 foot deck over looking the river. A pool would be perfect for Tucker to be able to cool off on hot summer days. Hopefully the demolition starts next year.
No comments:
Post a Comment