Day 2 at Childrens

We had the greatest RN named Michelle last night. (Must be the name). She took Tucker out to feed him and let me sleep all night. (very much needed). Tucker was lucky enough to be the first patient for MD rounds today. Good thing I showered early! The team told me that Tucker was doing well on the double dose of Lasix from the day before and that we were going to continue that for today and then taper him down to a double dose in the morning and at night. Let's hope that this fixes his struggle to eat. So far today, it hasn't gotten much better. He took less than an ounce and fell asleep and got all sweaty as well. He has a long road ahead of him for us to get discharged before Christmas. Sometimes random things happen so you can put your own life into perspective. The last 2 times we were on 8 east we saw what appears to be a healthy boy walking the unit all day into the night always accompanied by a RN. Today I saw him and spoke to him, "hi, i remember you from before...looking like you'll need new sneakers soon.". We both laughed and he continued to walk another lap around the floor. Later on I mentioned how sad it is to come to the floor and see the same folks from when we were here in October, I mentioned the boy and she told me that he has been on the floor for a long time, he is waiting for a heart. I completely believe that is what I needed to hear as I was feeling selfish that we might be here for Christmas. Not feeling that anymore.