Wednesday, December 14, 2011

Tucker Update.

Went to the cardiologist yesterday, another EKG and Echocardiogram, the stints are still where they should be. However, Tucker hasn't gained much weight since he left the hospital less than 2 weeks ago. He lost quite a bit while he was there so they are increasing his formula to 26 calories and adding Polycose Powder as well. He needs to put on as much weight as possible before his open heart surgery. If he doesn't gain a significant amount of weight over the next two weeks he will have to get an NG tube.

I was concerned that his O2 numbers have been creeping a little down, apparently when a baby sleeps his HR goes down, and so do his stats. So no more testing Tucker while he sleeps.

Dr. Porras said to plan for his Glenn Procedure to be sometime in the middle to the end of February.

A friend asked me what I needed the other day, my response: "a hotel room for a night with no TV, Internet or Phone so I can get some much needed sleep. ". Her response: "Just one night?". Me: "Yup, anything more and I wouldn't come home!". It might be time to call in some backup to give Gary and I a little break, these last few months have been a roller coaster of emotions.

On another note, Spencer had a good day at school today but had a difficult time taking his medicine tonight. He has an ear infection, i swear, its always a battle somewhere.

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