Good news! Tuckers central line and chest tube are out! Yay! Baby steps. He is doing well he just took 90ml of breast milk that I had frozen several months ago in advance for his big surgery. His pacing wires are still in directly to his heart, these are kept inside of the chest in the event that they need to restart his heart in an emergency. He has been up most of the morning and we will be able to transition out of the CICU and over to 8 east.
On a side note one of our fellow heart families who are here from New York and have been awaiting a heart transplant for one amazing sixteen year old boy, they "got the call" yesterday. Connor and his dad have been here for almost 110 days straight. Their family is wonderful, they hug us in the hall and always pop their heads in to see how we are doing. The amazing surgeons here worked on putting Connors heart in all night last night. I just saw him in the unit and he is stable and his new heart is beating. It's scary to think that someday this might be us, since Tuckers next surgery, the Fontan will only last approximately 20 years. I guess that we will cross that bridge when we come over it, however, it's always in the back of our minds.
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