Friday, March 2, 2012

Post Glenn - Midday of Day 4

Tucker had another nebulizer treatment at 10:30 am because he still has some fluid in his lungs. He also had another x-ray at noon, and it looks a bit better then yesterday. I just met with Dr. Samantha Butler from the cardiac neurodevelopmental program. Children with heart defects often have developmental delays, so now Children's has this program to catch these kids up an give them the best quality of life possible. The program will provide ongoing support as Tucker grows and develops. I think we would like to use this program more and drop our current early intervention provider if possible, because there have been instances where we take time off of work and they just never show up and don't bother to call. Everyone here at Children's seem so knowledgable, and we have heard horror stories from some other parents about out of state hospitals and misdiagnosis's. Tucker did not eat at noon because I made the mistake of giving him his meds first, so he in now fast asleep. His bottle is good for an hour, so we will try again at 1:00 pm. We have gotten word that if all continues to progress we may be able to take Tucker home on Monday or Tuesday to continue his recovery in his normal surroundings.

No comments:

Post a Comment