Monday, July 3, 2017

Nocturnal Nightmare and a HEART rock.


So last night we deceided to have a family night at The Mendon Drive In, where we found a awesome heart rock.  

Spencer and Tucker were playing at The Giant Slide until it was time to start the movie.  There were quite a few kids in line, so there was about 15 kids at the bottom waiting for sacks, and then about 15 kids in line at the top waiting for their runway to take off.  I had brought a chair over from the car, and my cell phone was starting to die, so I turned it off after a few photos and decided to waych them play.  There was nothing out of the ordinary about this day.  Tucker was acting completely normal until he came over to me and told me that he needed a drink of water.  I said, "ok, let me just get Spencer and we will head to the truck."  Tucker then went from 3 to a 100 in agitation, in under seconds, which I chalked up to just being tired.  He was then screaming and tugging violently at my clothes, so I left Spencer at the slide and took Tucker to the truck.  I asked Gary where the water was, and asked him if he could go to go get Spencer, he told me the water was in the back, I put the back down and put Tucker on the tailgate.  His lips were blue, almost purple... Tucker then complained that his belly hurt but be was pointing to his chest.  I screamed for Gary and he came over, and saw how blue they were, then Tucker girgled and he threw up several times, he went almost completly limp, told me that he needed to sleep, then eyes rolled back in his head, then his lips went white and he was unresponsive on and off for over 5+ minutes, then he came to and threw up again and told me that he wanted to go to sleep again.  I had to shake him alert several times.  We rushed him to Milford Hospital after as we called Children's Hospital.  After speaking with the person assigned to the parent calls, Abbas, which just so happened to be the same MD that we spoke with for his cardiac catheterization just a week before.  So he was familiar with his case and the "heart block" that occured during his surgery last week.  He made the decision that Milford could monitor him, however, the safest place to be was Boston.   So around midnight we were transported to Boston Children's ER via ambulance and we were admitted around 2:30am.   Abbas was thinking that it could be one of the following: Severe dehydration, a neurological problem, a mini stroke, something similiar to heart block, or that he threw a blood clot.  So we're here until they rule out the last three.


This morning during rounds, they ruled out dehydration when his electrolytes were normal.  Then the Neurology team ruled out a seizure, when he passed all of their testing.   Now we are currently at a standstill until all of his heart testing comes back.  While we wait for answers, we got to make fireworks, Children's style, visit with some not so scary clowns, visit with some of our favorite heart friends, AND had more root beer popsicles than we can count.  

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