Tucker had a very busy day today. We went for a chest xray early this morning and then the surgical team rounded in our room today. The team today contained our cardiologist and Annmarie, our favorite NP.
When Tucker was admitted he had gained 2 lbs. of fluid in 4 days in his chest. He only weighs 24lbs total. SO this is a lot for his size. As of today, he has lost .8lbs. This is a good sign that we are moving in the right direction. We are remaining positive that this is just extra fluid from the Fontan and that we will continue to see progress with the addition of extra diuretics like Aldactone, Lasix and Diuril. If we do not start to see more drainage from the medications, Tucker will get placed on a low fat diet (nightmare for a parent of a child with a milk allergy who only eats peanut butter). Fingers crossed for a quick stay this week.
After Gary arrived I stopped by B&W and visited one of our favorite heart friends, Stephanie Williams. She is a wonderful example for our heart kids. She has experienced the gift of a second change at life and is a heart transplant survivor. Please pray for her as she still has quite an uphill battle ahead of her. She still has her "bunny" from her very first surgeries. I am not sure Lamby will make it many more years, Stephanie's bunny looks better than Tucker's Lamby does now.
We filled out Tuckers All about me card today...We still have an IV line in! Whew..
Guess who saw Mommy drinking water today and asked for some...small MIRACES!
We saw Dr. Emani today, he assured as that surgery is a last resort to drain the fluid. I also asked about the child from Germany. He told me that not only did he fix one very sick child he fixed 5 children. I told him that he was amazing and that we don't mind sharing him with the world as long as he saves babies lives. ;o).
We must have walked the floor 50 times today. We walked so much mommy has shin splints. Note to self...Buy a pair of Dansko's!
Tucker got his stitches out today. We had to hold him down while Annmarie cut them out today, but there were plenty of hugs and giggles to go around after.
Tucker was so good tonight Mommy bought him a Dora balloon and drove him down to the ball drop for while. We were tired of seeing the same rooms and walls on the 8th floor. We got busted by out night RN Alex however, when we saw her in the elevator. DOH!
All smiles as Annmarie said goodbye, hopefully we wont still be here when she returns after her long weekend off.
Alex left her stethoscope in Tucker crib for a minute and that's all he needed to check Lamby's heart.
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