Day 18 A visit to Prouty Garden

Today, Tucker woke up in a wonderful mood.  He was vibrant and so happy, what a great sign!   During rounds they even mentioned our favorite four letter word today.  HOME!  Pending labs, weight check, X-ray, and switching to PO meds.  So maybe it won't be today, but hopefully over the weekend.  So we checked off all of our chores on our list and then went to the playroom for hours.  Bry and her mom came by while Mommy was over at Brigham and Woman's visiting Stephanie again, Tucker brought her the most beautiful purple tulips for her dreary hospital room. (Sorry I missed you guys). On our way over we went for a spin in the Prouty Garden, we were so happy to see the crocuses and tulips piping through the mulch.  Spring is finally coming.   It was a great morning!

Thank goodness for validation and parking passes. Thank you to our amazing heart group for the two passes which brought our few down even more.  ;o)

Daddy went into the hospital overnight to relieve Mommy as she could sleep another day on that pull out bed.  Mommy got home and waited for Spencer to get off the bus and brought him to the greatest place...The Mall!  lol I had to get a few things, while there I splurged on a new pair of shoes and some new running orthotics.  

Spencer was so patient while mommy did her shopping, I took him to the arcade for the typical boy experience.  We laughed and played all sorts of games.  

Me: Spencer get down from there!

Spencer: but I can't reach, if I'm here I'm not cheating, I'm too small.  

Me: Spencer it is cheating!

Spencer: not if I'm just playing myself!

He is SO my child!  Ha!

I paid $6 per ride for this happiness.  Since he was too short to ride solo, I paid another persons fees as well.  

Some things I am not proud of...ok it was the trash talking while playing my favorite childhood arcade game against my six year old child. He put up one superb fight for first place, but sadly he fell short.  Our deal, the loser had to take a photo with the score.  (I mean I have to show him how to loose gracefully, right?)

Mommy had a moment on the way home today after her visit with Stephanie, it shook me to the core.  For years we have said, we will be ok, lets just get through this catheterization or his next surgery.  It was today after visiting a twenty something with some of the same defects who is post heart transplant, that this is going to be our lifelong battle.  Every flu season, every low o2 saturation, every time he retracts back we head to the hospital.  Now as I am an advocate of taking one day at a time (hell, my schedule usually doesn't allow anything but that) however,sometimes it's too surreal that this is our "new" life.  So as we plan what my future career holds,"what if" is still right there in the back of my mind.  I am often assured that this is the constant worry of a heart parent, but at times, its overwhelming.